First Week of Summer

We had a busier week last week than what I would have imagined for the first week of summer.  

One of the things we did was go in for a neuro visit.  We just wanted to check in before kindergarten.  And we hadn't been in since January 2012.  One and a half years!

We assume Peter has now been seizure free for 2 full years.  His last myoclonic jerk was Memorial Day weekend 2011 and his last tonic clonic was Feb 2011.  His doctor told us that after a child has been seizure free for two years we can begin entertaining the idea of weaning his meds. (!!!)  I wondered when that would be the case so it was great news.  But I already knew that I'd rather not do that, esp with him going to Kindergarten.  She said that was fine and that our comfort level is a definite factor in the decision.  So we decided that we'll schedule an EEG for next year this time and then based on that, we'll make med decisions.  You can imagine that we feel such thankfulness for this good news.  My heart is always a mix of that and caution too.  Every ounce of me knows that I need to be able to trust God with whatever happens and I can't allow my hope to be solely in him getting to come off meds.  His med has certainly been one of the BEST things that's ever happened to us.  But the idea of being well is oh so amazing (and hard to fathom, if I'm honest).  But HE is able and good.  All the time.  So you can pray with us for continued healing and praise God for the gift of being seizure free.  Lord, hear our prayer.  We'll adjust the way we give his med this year to fit the school schedule better.  We'll keep the same daily dosage but give it in two doses instead of spread out over three.  

Catching up on ZZZZ's after a naptime appointment.

We also started swim team this week.  His group doesn't compete they just practice daily for 45 mins. 

 He's the second one over.  His teacher looks so much like my cousin's wife.  So I am thinking of you a lot at swim practice, Molly!