Lily loves to carry bags around and say "BYE".
Today she had 4 of them.... :)
My munchkins melt my heart... !!! I am so thankful for these little innocent days with them.
(her chin is extremely better after 3 days on Zovirax)
Sunday, February 6, 2011
Sibling LOVE
Peter takes after me and likes to be close... he often says to Lily as they are eating...
"Lily, I want to be CLOSEEEER!" as he grabs her chair and pulls it to him. Notice how their trays are overlapping :)!
As I'm sure most younger siblings do, Lily learns from, imitates and looks up to Peter. I was telling Mike today that she now won't the crust of her sandwich b/c she's seen that Peter doesn't. Mike said that when they were playing outside this morning and she wanted to come in but it wasn't time yet, she started saying "I UNT GOO!" ("I want Goo")... which is what Peter always says if we aren't doing or giving him what he wants... :)!!
Wednesday, February 2, 2011
medical mystery (potentially) solved
This time its Lily!!!
I took her to the dermatologist for the 3rd time today (and probably the 6-7th total time, including our pediatrician's office) for her CHIN. "It" came back last Monday and a week and a half later, using all the meds they've given us, its as bad as ever. So we headed in today. I was just going to show up if they didn't take us willingly. Her doctor wasn't in so we saw a nurse practitioner (so am cheering for NP's) and she suspected herpes after hearing our LONG story of Lily's chin. She called in another dr (Dr Konerding, who I think is well known around here) and she totally agreed. Apparently, it doesn't present in the usual way that it does on an adult (ME!) but its more deep in her skin so is just mi nut little blisters with a serous drainage on the first day, instead of being BIG blisters above the skin. Both of them felt sure that's what it is. We just have to wait for it to come back AGAIN and then take her in on the very first day so it can be cultured.
Honestly, I was just thrilled to have someone tell me something after 8 chin flare ups in 9 months.
Now the med... we don't have Zovirax in hand yet b/c apparently its 10 times as expensive as an anti-convulsant... WHO KNEW?!?! So I'm hunting down the cheapest pharmacy... Wal-Mart, I presume.
We're feeling "all done" with weird medical things over here! ;)
I took her to the dermatologist for the 3rd time today (and probably the 6-7th total time, including our pediatrician's office) for her CHIN. "It" came back last Monday and a week and a half later, using all the meds they've given us, its as bad as ever. So we headed in today. I was just going to show up if they didn't take us willingly. Her doctor wasn't in so we saw a nurse practitioner (so am cheering for NP's) and she suspected herpes after hearing our LONG story of Lily's chin. She called in another dr (Dr Konerding, who I think is well known around here) and she totally agreed. Apparently, it doesn't present in the usual way that it does on an adult (ME!) but its more deep in her skin so is just mi nut little blisters with a serous drainage on the first day, instead of being BIG blisters above the skin. Both of them felt sure that's what it is. We just have to wait for it to come back AGAIN and then take her in on the very first day so it can be cultured.
Honestly, I was just thrilled to have someone tell me something after 8 chin flare ups in 9 months.
Now the med... we don't have Zovirax in hand yet b/c apparently its 10 times as expensive as an anti-convulsant... WHO KNEW?!?! So I'm hunting down the cheapest pharmacy... Wal-Mart, I presume.
We're feeling "all done" with weird medical things over here! ;)
Tuesday, February 1, 2011
update on Peter
Ugh.... another wordy post... I need to take pics... I can't stand just words but its all I've got...
We've been very thankful for everyone's love and support and most importantly, PRAYERS, for Peter and us over the last week. It has blessed and sustained us.
I am happy to say that we are truly doing good today! Peter's had a great day- has totally seemed like himself in every way. God has been guarding my mind from worry, which is as much of a praise... and its totally the Lord, the Spirit, guarding my mind. And I'll gladly take it. Its easier here than projecting the future (which I have no knowledge of or control over).
We have started giving Peter the seizure medication b/c he had some "jerks" on Monday... he has seemed to tolerate it great so far and hasn't missed a beat. I am thankful.
We have PT scheduled for Thursday and OT scheduled to start next Monday. I've found a babysitter for Lily... once again, I am thankful for the Lord providing her!
We have follow up scheduled at VCU. Just thinking of that tempts my mind to worry (you don't need to read into that or worry for me, just pray for me to not worry)... but I know it provides the opportunity for a GREAT report so I am hopeful that will be the case! Yes, yes!
I've been trying to think on Matthew 6
26 Look at the birds of the air; they do not sow or reap or store away in barns, and yet your heavenly Father feeds them. Are you not much more valuable than they? 27 Who of you by worrying can add a single hour to his life?
30 If that is how God clothes the grass of the field, which is here today and tomorrow is thrown into the fire, will he not much more clothe you, O you of little faith?
and Psalm 139
13 For you created my inmost being;
you knit me together in my mother’s womb.
14 I praise you because I am fearfully and wonderfully made;
your works are wonderful,
I know that full well.
15 My frame was not hidden from you
when I was made in the secret place.
and John 9 (verses I've always loved from being a nurse)
1 As he went along, he saw a man blind from birth. 2 His disciples asked him, “Rabbi, who sinned, this man or his parents, that he was born blind?”
3 “Neither this man nor his parents sinned,” said Jesus, “but this happened so that the work of God might be displayed in his life.
And how happy are we for the work of God and his Glory to be displayed in our lives, even if that involves something hard.
We hope its only seizures, or something simpler, and we are guarding our hearts to love our boy and each other today but ultimately, we trust God. And there is nothing that can happen in this life that can separate us from God in Christ Jesus. We are thankful that God is for us. He has proved that to us by sending Jesus to pay for our sin, cover our inequities and make a way for us to be right with God. And so far He has proved to us by His Spirit that He is with us and will take us through this whatever it is! We hope its nothing! Yes, Lord, we do, we do! Hear our prayer! But we also want people to not see us or some strength we have (we don't!) but to see God's care of us, His glory thru our family and be encouraged that He cares for you too, personally. And its oh so good to know He is for you and loves you! Please keep praying for us and for our Pete. We love, love, love that boy!
We've been very thankful for everyone's love and support and most importantly, PRAYERS, for Peter and us over the last week. It has blessed and sustained us.
I am happy to say that we are truly doing good today! Peter's had a great day- has totally seemed like himself in every way. God has been guarding my mind from worry, which is as much of a praise... and its totally the Lord, the Spirit, guarding my mind. And I'll gladly take it. Its easier here than projecting the future (which I have no knowledge of or control over).
We have started giving Peter the seizure medication b/c he had some "jerks" on Monday... he has seemed to tolerate it great so far and hasn't missed a beat. I am thankful.
We have PT scheduled for Thursday and OT scheduled to start next Monday. I've found a babysitter for Lily... once again, I am thankful for the Lord providing her!
We have follow up scheduled at VCU. Just thinking of that tempts my mind to worry (you don't need to read into that or worry for me, just pray for me to not worry)... but I know it provides the opportunity for a GREAT report so I am hopeful that will be the case! Yes, yes!
I've been trying to think on Matthew 6
26 Look at the birds of the air; they do not sow or reap or store away in barns, and yet your heavenly Father feeds them. Are you not much more valuable than they? 27 Who of you by worrying can add a single hour to his life?
30 If that is how God clothes the grass of the field, which is here today and tomorrow is thrown into the fire, will he not much more clothe you, O you of little faith?
and Psalm 139
13 For you created my inmost being;
you knit me together in my mother’s womb.
14 I praise you because I am fearfully and wonderfully made;
your works are wonderful,
I know that full well.
15 My frame was not hidden from you
when I was made in the secret place.
and John 9 (verses I've always loved from being a nurse)
1 As he went along, he saw a man blind from birth. 2 His disciples asked him, “Rabbi, who sinned, this man or his parents, that he was born blind?”
3 “Neither this man nor his parents sinned,” said Jesus, “but this happened so that the work of God might be displayed in his life.
And how happy are we for the work of God and his Glory to be displayed in our lives, even if that involves something hard.
We hope its only seizures, or something simpler, and we are guarding our hearts to love our boy and each other today but ultimately, we trust God. And there is nothing that can happen in this life that can separate us from God in Christ Jesus. We are thankful that God is for us. He has proved that to us by sending Jesus to pay for our sin, cover our inequities and make a way for us to be right with God. And so far He has proved to us by His Spirit that He is with us and will take us through this whatever it is! We hope its nothing! Yes, Lord, we do, we do! Hear our prayer! But we also want people to not see us or some strength we have (we don't!) but to see God's care of us, His glory thru our family and be encouraged that He cares for you too, personally. And its oh so good to know He is for you and loves you! Please keep praying for us and for our Pete. We love, love, love that boy!
I've had too many posts lately w/o pics... so I found this SUNNY pic of my handsome blonde babe... seriously, he's good looking! We are trusting God for the dream He has given Peter of DRIVING! Its the boy's dream... and we will be proud. He can make a way :) We pray that his life will glorify God.
Wednesday, January 26, 2011
random recent pics
Lily is wearing her big bro's shoes... they are enjoying each other lately & like playing together. Every morning as we are getting back in the van after dropping Peter off at preschool, she asks "ere's Pete?!" (She knows the answer by now, she's just in the habit of asking.... so sweet!)
my 2 fav men
playing in the last patch of snow they found at the river
i still like (LOVE) to hold her like a baby!!
the before pink and the to-be after "bleeker beige"... still in progress
Monday, January 24, 2011
today
It was a crazy morning (in real life and in my head)...
went walking with Blair (that was the good part),
but Lily woke up with a red, inflamed, raw looking chin (ugh, it just hurts my spirit!),
then while I am showering, Peter decided to sneak a muffin (that we made yesterday) and leave a trail of crumbs thruout the entire house! UGH. No time to clean it up.
We leave late for Peter's audiology appt after rushing, rushing to all get ready, make 2 wrong turns near the school (into a park next door and into the school bus driveway) so arrive late too.
When I go into the "booth" to sit with Peter, Lily cries like crazy. I leave the booth and Lily continues to cry b/c she doesn't understand why Peter is still in there (which IS sweet that she cares, but its just so frustrating for "us" to not be able to "behave" as the professionals who are helping us would like for us to... i.e., crying child that I have to help instead of being in the booth with Peter like they'd like me to be & we are not being quiet like we are supposed to be)... not loving 18-24 mos. GOOD NEWS is that Peter's hearing is PERFECT! I am thankful... had been praying, praying on the way over for God to allow me to submit to whatever His will is for Peter's life, despite my craziness. I am sure He would do that but I thank Him for perfect hearing. (I'd assumed it was normal but you know that you never really know.) Thankfully, the lady who tested was patient with us. I can never thank others enough for that! I promptly call Mike and leave him a message that Peter's hearing is great and I am getting a babysitter (for Lily)! Hopefully, my last eval/therapy appt with both of them. Its just not do-able. Then outside, its like 20 degrees and the stroller won't close (there's stickiness in the lever-thingy from juice a while ago)... I almost decide to leave it in the parking lot. I just felt so worked up. Emily had to bear the brunt of it as she happened to call after we got home. I wish I was more patient. God help me.
Thankfully, this afternoon has been better. I've spent about 2 hours painting (the dining room, yay!)... now that I'm a little in, I can see progress, its not the frustrating initial feeling of thisisgoingtotakeforever! Painting is nice b/c its just so mindless & the time to myself has given me the chance to regain my composure. Thank you Lord!
went walking with Blair (that was the good part),
but Lily woke up with a red, inflamed, raw looking chin (ugh, it just hurts my spirit!),
then while I am showering, Peter decided to sneak a muffin (that we made yesterday) and leave a trail of crumbs thruout the entire house! UGH. No time to clean it up.
We leave late for Peter's audiology appt after rushing, rushing to all get ready, make 2 wrong turns near the school (into a park next door and into the school bus driveway) so arrive late too.
When I go into the "booth" to sit with Peter, Lily cries like crazy. I leave the booth and Lily continues to cry b/c she doesn't understand why Peter is still in there (which IS sweet that she cares, but its just so frustrating for "us" to not be able to "behave" as the professionals who are helping us would like for us to... i.e., crying child that I have to help instead of being in the booth with Peter like they'd like me to be & we are not being quiet like we are supposed to be)... not loving 18-24 mos. GOOD NEWS is that Peter's hearing is PERFECT! I am thankful... had been praying, praying on the way over for God to allow me to submit to whatever His will is for Peter's life, despite my craziness. I am sure He would do that but I thank Him for perfect hearing. (I'd assumed it was normal but you know that you never really know.) Thankfully, the lady who tested was patient with us. I can never thank others enough for that! I promptly call Mike and leave him a message that Peter's hearing is great and I am getting a babysitter (for Lily)! Hopefully, my last eval/therapy appt with both of them. Its just not do-able. Then outside, its like 20 degrees and the stroller won't close (there's stickiness in the lever-thingy from juice a while ago)... I almost decide to leave it in the parking lot. I just felt so worked up. Emily had to bear the brunt of it as she happened to call after we got home. I wish I was more patient. God help me.
Thankfully, this afternoon has been better. I've spent about 2 hours painting (the dining room, yay!)... now that I'm a little in, I can see progress, its not the frustrating initial feeling of thisisgoingtotakeforever! Painting is nice b/c its just so mindless & the time to myself has given me the chance to regain my composure. Thank you Lord!
Friday, January 21, 2011
Admiration
My hat goes off to working moms! My house has been in upheaval all week b/c I have used naptime to do this course. My body just feels like its been racing all week to get this extra something done (the mental burden is as bad as the physical). The grass is greener this week on my non-working side of the fence. Sometimes I do wonder what it would be like to work part time but after this week, I'm reminded that I have it pretty darn good!
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