Throw Back Thursday

A few minutes ago, I looked at the date on my watch and realized its 8/7. Then remembered that was the date that Peter had his first seizure: 8/7/08.  Its burned in my memory.  Then a few minutes later saw a "#TBT".  So thought it was appropriate.

 Peter was 11 mo old and had his first fever- from his one and only ear infection.  We knew that he was bad off because he just laid on Mike like this- which was a rarity for him to be still.  His fever peaked at 103.8.  I was nursing him before bed when it happened.  Terrifying and yet you feel the presence of God in a particularly close way- maybe because you are simultaneously screaming at Him for help and wanting to add some curse words to the Curse.  

His first night in the hospital.  I am glad that we didn't know then what we know now.  Although, apart from the first few months when he began having non-febrile seizures, let it be said that this has been an easy and ideal epilepsy journey.  

*In unrelated news, its been a great summer.  I've enjoyed it and its clipped by quickly & with a good balance.  But this week the kids are driving me crazy.  It helps make the going to school thing easier.

EMU Check In

The week after school got out Peter had a planned stay at the Epilepsy Monitoring Unit.

He was really pumped about it.  I am always shocked at how God provides for us in this boy's attitude.  He has always been able to tolerate the medical stuff and does it with ease. We had been telling him a little more about why he was going in and just more details about the situation in general.   He's done a great job at processing it appropriately.

 He had a 3 day, 48 hour EEG.  We found out that he continues to have generalized epilepsy with myoclonus.  However, his EEG on Keppra looks great.  While that isn't the outcome we were hoping for, we have to be thankful for the great way Keppra works for Peter.  And I have to trust God's plan for us, for Peter in this.  Honestly, Peter has been a delightful child this summer.  He is maturing before my eyes and turning into such a nice, smart, caring, loving, thoughtful boy.  We still have our moments but there is such progress.  He has learned so much and functions so well.  I am happy to talk about this to anyone who asks but I will probably keep it brief here out of respect for the handsome boy.

In a strange way, these scenarios are always clarifying for me.  It helped give me a better mindset as we went into summer.  This is our life.  This is his childhood.  It is my job as his mom to make him know how valuable he is.  It always gives me a softer heart towards him, more compassion, and helps tame my demands.  We don't do this perfectly AT ALL.  I fail DAILY.  But its been a joyful summer to love on this boy and help him to see how awesome God made him.  And He really did. It has been a rough life behaviorally with Peter but I think he is going to turn into the nicest kid.  He is so quickly repentant.  He thinks processes through so well.  I love his imagination.  He is so thoughtful of others.  

He put the castle together over the 3 days he was there!  Its no longer fully together.  There was too much play to be had... and toys were made for playing.