EMU Check In

The week after school got out Peter had a planned stay at the Epilepsy Monitoring Unit.

He was really pumped about it.  I am always shocked at how God provides for us in this boy's attitude.  He has always been able to tolerate the medical stuff and does it with ease. We had been telling him a little more about why he was going in and just more details about the situation in general.   He's done a great job at processing it appropriately.

 He had a 3 day, 48 hour EEG.  We found out that he continues to have generalized epilepsy with myoclonus.  However, his EEG on Keppra looks great.  While that isn't the outcome we were hoping for, we have to be thankful for the great way Keppra works for Peter.  And I have to trust God's plan for us, for Peter in this.  Honestly, Peter has been a delightful child this summer.  He is maturing before my eyes and turning into such a nice, smart, caring, loving, thoughtful boy.  We still have our moments but there is such progress.  He has learned so much and functions so well.  I am happy to talk about this to anyone who asks but I will probably keep it brief here out of respect for the handsome boy.

In a strange way, these scenarios are always clarifying for me.  It helped give me a better mindset as we went into summer.  This is our life.  This is his childhood.  It is my job as his mom to make him know how valuable he is.  It always gives me a softer heart towards him, more compassion, and helps tame my demands.  We don't do this perfectly AT ALL.  I fail DAILY.  But its been a joyful summer to love on this boy and help him to see how awesome God made him.  And He really did. It has been a rough life behaviorally with Peter but I think he is going to turn into the nicest kid.  He is so quickly repentant.  He thinks processes through so well.  I love his imagination.  He is so thoughtful of others.  

He put the castle together over the 3 days he was there!  Its no longer fully together.  There was too much play to be had... and toys were made for playing.