No Idea

In my 6 years of being a nurse, I never had any idea of the anxiety that existed on the other side. 
Today we had an appt with a pediatric neurologist.  He's one we'd only ever seen as an inpatient.  After his regular neuro appt in Jan, she referred us to get a second opinion on his sleep studies.  We were thrilled b/c that meant we got to see the highly-sought-after Dr. L.  So we saw him today.

I am always super anxious about these appointments.  Not as nervous as I was earlier on this journey, but there will always be some anxiety mixed in.  Mostly, for me, it comes from believing that its all so dependent on my "report" and my observations.  Today on the way there, as it came down to the wire, it finally came to me in my anxiety, that I am given no choice but to trust in the sovereignty of God.  To trust that He covers all of the areas that I have no idea about.  And finally, that brings such rest and peace.  

The appointment went really well.  I didn't expect to come away with much new information, just some confirmation on what we already know.  I sorta felt selfish in taking this doctor's time to have some of my emotional needs met.  But I'm also a mom and I want what's best for my kid.  And I want lots of doctors' input on that, to make sure we have all our bases covered.  He was reassuring that we don't need to be alarmed about any of the concerns we had taken to discuss.  

And we got to, once again, discuss the great thing it is that his seizures ARE controlled on ONE medication.  (I sorta tremble to write that b/c as much as time has taken some of my anxiety of that not being true, I am always aware that anything is possible.)  Its almost been one full year since we've seen any seizure activity.  I am forever grateful.  We continue to pray that would be true.  And tremble at the thought of it not being true.

All he had to say on other fronts was reassuring as well, specifically about the differences in boys and girls.  I for some reason sorta thought I had a clue about boys having grown up with brothers.  Turns out, it all stumps me on a daily basis.  I'm constantly praying for more understanding and wisdom in parenting a boy.  Well, parenting in general.

A bonus today is that a sweet friend kept Lily for me.  So Peter and I had lunch together afterwards at Chick-Fil-A.

 Cheers for chicken and waffle fries!!

We are doing the Apostle's Creed at church.  On Sunday, we talked about God being the Creator, "Maker of Heaven and Earth."  We read these verses.  Peace came over my hectic body at the hearing of God's Word.  

May you be strengthened with all power, according to his glorious might, for all endurance and patience with joy, giving thanks to the Father, who has qualified you to share in the inheritance of the saints in light. He has delivered us from the domain of darkness and transferred us to the kingdom of his beloved Son, in whom we have redemption, the forgiveness of sins.  He is the image of the invisible God, the firstborn of all creation. For by him all things were created, in heaven and on earth, visible and invisible, whether thrones or dominions or rulers or authorities—all things were created through him and for him. And he is before all things, and in him all things hold together.

Colossians 1:11-17

Thank you, Creator, for this boy!  

{pictures are my Picasa version of Instagram :)}

Summer Break, Day 1

I really want to be intentional this summer and set some goals for things we'd like to accomplish.

Letters are on our list (writing them, phonetic sounds).  And mixing in other good skills as we learn...

So we did a little "school" this morning.  I am always ambitious about this stuff for about 3-4 days and then I lose momentum or get frustrated or something along those lines.  I've divided up the letters over 12 weeks this summer.  Hopefully, that will help me stick to it.  We'll see.

And hopefully more structure will help us to reign in the wildness that is sometimes happening in our house ;)

Today we did the letter "Bb"

He colored the pictures that start with a B in Blue.  Then wrote B's... some traced, lower ones on his own.

Then we rolled out the play doh.  Some OT with a little speech mixed in... 

'roLL it' instead of 'row it'.

Let the Summer Begin!

"Writing"

This is another something that screams at me the differences between boys and girls.  And even then, how children are so individual.  You get what you get.  Its as much nature as nurture.  So not to my credit.  It kinda takes the pressure off a little when you know its not just how much you work with them.  Each has their own ways and strengths, regardless of efforts.  

This girl loves to "write". 

How sweet are her arms and hands.

She wrote the up and down "words" and I drew "pacis" at her request.

I'm sure you wouldn't have known what those were.  haha.

I wrote her name then asked her to write it... 

and she did!  (bottom right)

Festival

 We made a quick trip to a local kids festival this morning.

Such a pretty day!

Tidbits from Our Week, Close Up ;)

Berries.  

These are for Mommy, Daddy, and Kellie.

 Bathtime!

 last morning snuggle time

We watched TV under the condition that she sit in my lap.  ;)

 sweet chubby feet

We were spoiled this week with lots of date nights.  We went OUT on Tues to Melting Pot (YUM- we had a coupon for a free cheese fondue and Maw was here). We had Chipotle on Thurs (small group!).  Last night, Goo and Pop took the kids so we had date night in the backyard.  I had leftover Chipotle and Mike had this...

and this. 

Both kinda gross but I appreciate self sufficiency.

 Clovey joined us.

 Yesterday was Bike To Work Day so Mike biked downtown to a park where everyone met up, then had a Police Escort down to his building near the Capital.

PS- SCHOOL'S OUT!!!

Summer Birthdays

Peter and one of his classmates got to celebrate their summer birthdays this week at school.  

Checking out their crowns!

After a birthday rhyme, they got to pick a treat.  They each got parachute men.... evidently the hot item in the grab bag.  

Their teacher let them drop them from the table.... how cool is she?!